WATCH: This story this Sunday at 8:55 and 17:55 on "Vat my Hand" sponsored by Builders' Warehouse on KykNet Channel 144
Hi, my name is Tiani, I am Tersia van Baalen‚??s daughter. I am 19 months old and I have Brain Cancer. I can be cured, but I need to go to Houston, Texas in the USA for proton therapy. This will cost almost a million rand. My mommy and daddy and kind people have already donated most of the money ... we just need a little more. I would love to share my story with you.
I started to walk on my 1st birthday. At 13 months mommy and daddy noticed that I sometimes held my neck to the right and that I started to stumble and fall a lot. Mommy took me to the doctor and he said that I had a bad ear infection along with tonsillitis. I went into theatre for my grommets on the 15th of May 2012.
Mommy took me back to the ear-nose- and throat specialist but he said that he didn‚??t know what was wrong with me, so mommy took me to my pediatrician. He said they might have injured my neck during the previous day‚??s operation. He tested my reflexes and noticed that my right leg‚??s reflex was abnormal. He sent me for x-rays of my neck to see if there were any injuries and also for an MRI scan.
Mommy and Daddy prayed that it was only a neck injury. My mommy was 36 weeks pregnant with my little sister and was not allowed to come with. Mommy prayed that God would send an angel to hold my hand so I would lie still.
The doctor told mommy and daddy that I had brain cancer. They gave me antibiotics, morphine and cortisone to help with the swelling on my brain and kept me under sedation most of the time. They wanted to give me a few days before doing the operation to remove the tumor. The doctors spoke to mommy and daddy and said that my chances of survival were really slim. They said I might not survive the surgery and if I did I could be blind, deaf or paralyzed.
I came out of a six hour operation and miraculously ‚?? I could move my arms and legs! What a relief for mommy and daddy! I didn‚??t know what was going on, because I couldn‚??t see ‚?? my eyes wouldn‚??t focus and I couldn‚??t use the left side of my body. I could also not lift my head or swallow my milk. I was like a new born baby, but worse ‚?? because I couldn‚??t swallow.
The tumor was huge (7cm by 6 cm) and took up a lot of space in my skull. Luckily the doctor managed to remove 95% of the tumor. He said it was an absolute miracle ‚?? the tumor lifted by itself near my brainstem ‚?? and I know this is because of the power of prayer. The doctors said I might have to stay in hospital for 6 months ‚?? but 3 weeks after surgery I went home!
Mommy and daddy spoke to the oncologist and he suggested that I start with chemo as soon as possible. So as soon as my sister, Mioni was born, I started with chemo therapy. I got really sick from the chemo and lost a lot of weight and most of my hair.
Mommy and Daddy did a lot of research and found a different type of radiation called ‚??Proton therapy‚?Ě. They estimate the cost for 30 days of treatment to be 112 000 US dollars which is the equivalent of R940 000.
Thank you so much for reading my story.
Lots of love and kisses
Or follow: http://vane275.wix.com/hope-for-tiani-#!contact/c1z0x
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